Saturday, 22 April 2023

Once again, the s**t has hit the fan...even the chocolate bunnies couldn't save it...

Here I was, going to make a joke about the revenge of the chocolate bunnies, when all hell seemed to break loose.

For starters, I got told off for complaining about not being able to gain weight. This was from people who are always on a diet. Believe me, for years I was also on a diet. And now, no matter how much I stuff my face, I'm unable to gain the weight. So trust me when I say that I know what it's like. And I told my friend who is always whingeing about the fact that she's too fat (she isn't) that she should stop worrying and just enjoy life. What an oops!

The colorectal people took nearly five weeks-FIVE weeks!!- to suddenly decide that the biopsy results are inconclusive. They were supposed to order some really important tests-but didn't. Instead, they discharged me without contacting me about anything - excuse me! Here, I thought that I was the patient! They left the tests to my GP, who has been jumping up and down and calling them incompetent (they are). So the immunologist is dealing with everything-and it isn't even her job to do that. But nobody else will, so she's stuck with me. For now.

And I'm still extremely underweight and feeling like a bucket of fertilizer (I'm being so polite, aren't I?). Nobody has a clue. And the best thing I can do at the moment is keep eating, but be mindful of the things I'm eating. My stomach tells me now when I've eaten something it doesn't like.

That is the whole colorectal story, and how, when the NHS is good, it's fine, but when it's bad (like it has been), it is a total pile of shit (so much for being polite). But-at the moment, there are other things on my mind. Like: the complaint I made with the Ombudsman about the London Borough of Haringey. 

Now-bearing in mind that in the many decades I've lived in this country, the only council property I've ever rented is this one, it has been a real eye-opener. No wonder the tabloids are filled with horror stories about abuse, rats (the two legged as well as the four legged), crime, everything you can possibly think of - and nothing is ever done to help people who need it.

The Ombudsman found in my favor-did I tell you? And I've been given an award, while the council has had a strongly worded criticism. I'm still waiting for the money-and if the council doesn't cough it up, on Monday I'm to inform the Ombudsman. That won't go down well, since Haringey is one of the worst boroughs in London.

To make matters even greater-I received an email from the Ombudsman last week. The complaint I made about favoritism, incompetence and racism on the part of the tenancy management team is now being taken up by the Ombudsman as a separate issue. I seem to be making friends everywhere in the council, don't I? 

The lesson here is clear-at least it is for me. Nobody will speak up for me if I don't speak up for myself. Honestly, if you're a woman (of any age), and you're on your own, there are people who will abuse you, threaten you, try to frighten you, do whatever they can to assert their authority (even if they have none). If you don't stand up and fight for yourself and your rights, don't count on anyone else to do it for you-or even to help you do it for yourself.

Maybe I should invest in some boxing gloves. And a suit of armor...







Wednesday, 5 April 2023

The Battle Continues

 The one good thing about this past week is that I'm no longer blowing myself across time and space (that means: no farting). I was squeaking when I was walking-it was, I suppose, hilarious. At least I didn't have what I've been calling for years an SBD (Silent But Deadly), 

The problem has been the fact that I've done nothing but eat, sleep, wee and poop. I might as well have been a dog. There isn't even anyone to come and scratch my ears...

Easter is this weekend, so nobody seems to be doing anything over at the hospital. I've heard nothing from anyone-except the immunologist, who told me last week that more tests are going to be done. More tests! They are really clueless as to what is causing all this weight loss. My friends are telling me that I have the ideal opportunity to eat whatever I want, as much as I want, and not worry about losing weight. Huh.

If I lose more weight, I won't have to open any doors; I can just slide under them.

Tomorrow I get weighed. It's infusion day, so I'll find out what other surprises are in store for me. I just have to accept that I'm at the mercy of doctors who are clueless. Maybe I'll be one of those people with something so extraordinary, so very weird, that it'll be written about in medical books. As long as it isn't posthumous, I don't care. I told them to fix it. 

So here we are at Easter. I've bought my Lindt chocolate Easter bunny, as I do every year-I might even splash out on a large Easter egg. Oohhh, all those calories! Who cares?

Happy Easter, all. Eat, drink plenty of wine or whatever, and don't count the calories. It's Easter. Calories don't count.