Wednesday 28 October 2015

Back in the saddle - and not a decent horse in sight

Since last time, I have been irradiated, magnetized, poked, prodded, and otherwise interfered with (medically speaking, of course). Every day I have been to a different clinic, specialist, test-it's enough to make my head spin. And-I'm not finished yet.

Last week was my birthday, and that was the one day I went on strike: no tests, no hospitals, nothing. I felt like I was on holiday...and it was great. I had breakfast in a local restaurant, did a little retail therapy, cooked a lovely meal, had some champagne-lovely. I even sat in the park and meditated, recharged, readied myself for - today. I will soon be on my way to have a tube shoved down my throat (I don't know why, but doctors seem to be fascinated by my throat. Very strange) to find out why I had three months with no voice. So off I will go, and for a couple of days afterwards I will probably be mute. Goody. I'm tired of explaining to the hospital people that CVID is hereditary. Do they still ask if I'm contagious? Where am I living, exactly? Of course they do. Grrr...

Last week I went to see Jersey Boys in the West End. I decided that I really haven't done anything special on my birthday since-well, since before the Gentamicin, and that was five and a half years ago. So I splurged, and swallowed hard (expensive? Oh, yeah), got the ticket and braved hordes of people and teeming rain and took myself to Piccadilly. And I enjoyed it. The American accents were dire, of course. In a word, they sucked - but I expected that, and for me, it was all about the music. And the musical numbers were superb. For a couple of hours I just listened to music and didn't think about anything medical.

Well, I had a birthday. And I am back in the saddle, as they say: time to start going out and doing things. Weekdays are tough, because I am not finished with all the hospital stuff yet-but in December everything eases off, and that is when I will take myself out and start doing things. I need to walk more, I need to do my exercises more-and I went to Queen Square on Monday and had to retake the platform test (the thing moves, and I am tethered so I don't fall off). I did really well with my eyes open, but failed the eyes closed test (no surprise there). Even with all the surgery, and the illness, and everything-I'm still improving. I have until February to do more, because I repeat the test in February.

I seem to have defied all expectations by not only improving, but by still being alive (and relatively healthy. Of course, if they keep scanning me, they will cause cancer, the idiots!).

The cougar is on the prowl (maybe. But I am shy, so - maybe not).

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